How to Find a Doctor Who Can Prescribe Voydeya Near You [2026 Guide]

Voydeya (danicopan) cannot be prescribed by just any doctor. Due to the VOYDEYA REMS program requirements, only physicians who have completed REMS certification are permitted to prescribe it. In practice, this means you need a hematologist — typically one experienced in managing paroxysmal nocturnal hemoglobinuria (PNH). This guide explains how to find the right specialist, what to expect, and how to prepare for your appointment.

Who Can Prescribe Voydeya?

To prescribe Voydeya, a physician must be enrolled and certified in the VOYDEYA REMS program. In practice, this is almost exclusively:

Hematologists — specialists in blood disorders, including PNH

Hematologist-oncologists — physicians who manage both blood cancers and non-malignant blood diseases like PNH

Primary care physicians, internists, nurse practitioners, and urgent care providers cannot prescribe Voydeya. Voydeya is reserved for specialists who are managing PNH, and those specialists must be REMS-certified.

How to Find a REMS-Certified Hematologist Near You

Here are the most effective ways to locate a hematologist who can prescribe Voydeya:

Contact Alexion OneSource. Call 1-888-765-4747. The OneSource program can connect you with hematologists in your area who are already enrolled in the VOYDEYA REMS.

Use the NORD Rare Disease Specialist Finder. The National Organization for Rare Disorders (rarediseases.org) maintains a directory of specialists for rare conditions including PNH.

Contact the AA&MDS International Foundation. The Aplastic Anemia and MDS International Foundation (aamds.org) maintains resources specifically for PNH patients including specialist referrals.

Ask your current hematologist if they are REMS-certified. If you already have a hematologist managing your PNH on eculizumab or ravulizumab, ask them directly: "Are you enrolled in the VOYDEYA REMS?" If not, they can enroll — it typically takes days to weeks.

Seek a PNH center of excellence. Major academic medical centers with hematology programs are most likely to have REMS-certified specialists. Academic centers in major cities often have dedicated rare blood disorder clinics.

What to Bring to Your First Appointment

Coming prepared can significantly speed up the process of getting Voydeya prescribed. Bring:

All prior lab results: flow cytometry results confirming PNH, complete blood counts, reticulocyte counts, LDH, bilirubin levels — ideally from the past 6–12 months

Current and prior medication history, especially C5 inhibitor (eculizumab/ravulizumab) dosing schedule, start dates, and lab results while on therapy

Transfusion history: dates, number of units, reason if documented

Vaccination records, especially meningococcal and pneumococcal vaccines

Insurance information and pharmacy benefit card

A written list of all current medications (including supplements) for drug interaction screening

Is Telehealth an Option for Voydeya Patients?

Telehealth options for Voydeya are limited, for several reasons:

The REMS program requires specific patient counseling and documentation that many specialists prefer to complete in person

Vaccination administration requires an in-person clinical setting

PNH is a complex condition typically managed in-person, particularly for new patient assessments

Once a patient is established on Voydeya, some follow-up visits — such as lab review appointments and prescription renewals — may be conducted via telehealth depending on the provider and your health plan. However, initial prescribing almost always requires an in-person visit with a REMS-certified hematologist.

For more information about Voydeya, see our overview article What Is Voydeya? Uses, Dosage, and What You Need to Know. And when you're ready to find where Voydeya can be filled, medfinder is here to help.