How to Find a Doctor Who Can Prescribe Givlaari Near You [2026 Guide]

Givlaari (givosiran) cannot be prescribed by every doctor. Because acute hepatic porphyria (AHP) is a rare and complex disease, major insurers require that Givlaari be prescribed by — or in consultation with — a physician who specializes in the condition. For most patients, finding this specialist is one of the first and most important steps toward treatment.

This guide explains which types of doctors can prescribe Givlaari, how to find one near you, and what telehealth options exist for patients in areas without local expertise.

Which Specialists Can Prescribe Givlaari?

The following specialists are typically eligible to prescribe Givlaari and are recognized by payers as having the expertise required to manage AHP:

• Hematologists — Blood disorder specialists; often manage AHP because porphyrins are produced in the heme synthesis pathway
• Hepatologists — Liver specialists; relevant because AHP originates in liver enzyme dysfunction
• Gastroenterologists — GI specialists who may manage AHP, particularly when abdominal symptoms dominate
• Metabolic disease specialists / Clinical geneticists — Physicians specializing in inherited metabolic disorders; ideal for AHP given its genetic basis
• Neurologists — May manage AHP in centers where the neurological manifestations are prominent

Note: Primary care physicians may prescribe Givlaari in consultation with a specialist on some plans, but most payers require a specialist prescriber or a documented specialist consultation. Always verify your specific plan's requirements.

How to Find a Porphyria Specialist Near You

AHP specialists are not uniformly distributed across the country. Most are concentrated at academic medical centers and porphyria centers of excellence. Here is how to find one:

• American Porphyria Foundation (APF): The APF maintains a directory of porphyria specialists and expert centers at porphyriafoundation.org. This is the most reliable starting point.
• Porphyrias Consortium: Part of the NIH Rare Diseases Clinical Research Network, the Porphyrias Consortium includes expert centers across the U.S. that diagnose and treat all types of porphyria.
• Alnylam Assist® referral: Call 1-833-256-2748. Alnylam Case Managers can help connect you with specialists and Givlaari-experienced prescribers in your area.
• Academic medical centers: Large university hospitals and teaching hospitals often have metabolic disease or rare disease clinics. Search your region's academic medical centers for porphyria clinics.

Telehealth Options for AHP Patients

For patients in rural areas or those who cannot travel to a specialist center, telehealth has become an increasingly viable option for AHP management. Several academic porphyria centers now offer telehealth consultations. This can be especially valuable for:

• Initial diagnosis confirmation and genetic counseling
• Getting a specialist consultation letter to support prior authorization at a local prescribing physician
• Ongoing monitoring and treatment management between local in-person injections

Note: Givlaari itself cannot be prescribed or administered via a telehealth visit only — the injection must be given by a healthcare professional in person. But the prescribing specialist relationship can often be maintained via telehealth in a collaborative care model with a local provider.

The Diagnosis Challenge: Getting to the Right Doctor First

One of the most frustrating realities for AHP patients is that the condition is frequently misdiagnosed for years — sometimes decades. Attacks mimic appendicitis, psychiatric crisis, Guillain-Barré syndrome, and other conditions. The abdominal pain can be dismissed or attributed to anxiety. By the time a correct AHP diagnosis is made, patients may have seen dozens of specialists without success.

If you suspect AHP but have not received a confirmed diagnosis, start with urine and blood porphyrin precursor testing (ALA, PBG, porphyrins) during or shortly after an acute attack, when levels are most elevated. Ask your primary care physician to refer you to a hematologist, hepatologist, or metabolic disease specialist who has experience with porphyrias.

After Finding Your Specialist: What Happens Next

Once you have an AHP specialist who agrees Givlaari is appropriate, they will submit the Givlaari Start Form to Alnylam Assist® and begin the prior authorization process. Work with your specialist and Alnylam Assist® to identify your site of care for monthly injections. medfinder can help you identify specialty pharmacies and clinical sites in your area that can coordinate your Givlaari administration.

See also our guide: How to find Givlaari in stock near you.